Day 11 of Tube-Weaning
Eric has been 3 days without food (during the day and while sleeping) and no progress has been made. Every play picnic has ended in failure since he will not touch the food. Putting food in his hand or touching it against him in anyway, caused him to cry. It cannot be a texture thing since he has touched similar non-food items before. It appears that Eric is very food-phobic.
The good news is that Eric is back to drinking water and will now use his spoon. With only water of course. The spoon is a really big deal as Eric has been avoiding anything in his mouth for a long time.
We did take away his Pedialyte at night and the next day it was obvious he was suffering. He wasn't dehydrated, but he did not feel well. We thought we were getting close to a breakthrough. Cris gave him 16 ounces of Pedialyte while he was sleeping and he perked up. His moods were back to normal and he had lots of energy. However, all progress had been lost.
We'll follow this until the end and start bringing back some food. We've decided we will only feed him enough at night to give him concentrated calories. Eric will need to hydrate himself during the day. He's doing okay with it so we are not worried about that aspect. The point is to let decide when to eat but take away our fears of him losing too much weight.
We are considering alternative therapies to help him get rid of his food phobia. We have not been successful in the past with food therapists. We will probably need a psychologist. Another treatment that seems successful with others is Hypnotherapy and Emotional Freedom Technique (EFT). More research will be needed.
Monday, July 04, 2011
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tube-weaning
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